I was diagnosed with a condition that affects more than half my body

I am a housewife who homeschools and create notebooks, journals, planners, cards, bookmarks, t-shirts, mugs and stickers for people like me

People who refuse to be a victim because of their circumstance

A few years ago, I was denied disability by the state of Georgia. They told me I was no longer able to complete the duties in the field that I had been in for 20+ years. A field that I am good at. Okay maybe I was just good at putting it on my resume and showing up to work on time.

But the state suggested I get a job doing something else … I forget, but it was something like monitoring, after they received plenty of documents proving that I am unable to work a full day. Not to mention all of the medication I am prescribed that clearly state on the warning label not to operate heavy equipment or a vehicle and may cause dizziness or drowsiness.

On my last job that I started, I was so worried about not being able to miss a day of training as that would be grounds to be released from employment, which they were drilling the entire time for the first six weeks, and of course … I break out into hives within the third week!

Which lead to the very condition that I was denied disability.

Now, there is a condition for chronic hives, it is called urticaria. I learned about this in a peculiar way. Unfortunately, I struggle with food allergies and suffer from hives eating certain foods. Hives can be somewhat controlled by Benadryl and will cause the hives and you to calm down but then who can work while they are drowsy? I was so worried that I would not be able to sit all day, every day for this training that I broke into hives, so let’s get back to the condition I have less control over.

Which is Fibromyalgia

Fibromyalgia, according to the mayo clinic Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. [These] Symptoms often begin after an event, such as physical trauma, surgery, infection or significant psychological stress. Women are more likely to develop fibromyalgia than are men. While there is no cure for fibromyalgia, a variety of medications can help control symptoms. Exercise, relaxation and stress-reduction measures also may help.

Let’s discuss:

However,

Widespread pain – that means it does not affect just the head, arms and legs, it affects everything, everywhere all at once thus sleep is deprived, you forget what you had on the day before, your kids names and you are in a mood because …. wait for it

No one fucking understands

Symptoms began – after a traumatic event (and is more likely to develop in women than men), which sounds like PTSD to me and I am black! So there is that …

Did you know that (most) Black people suffer from Post Traumatic Slave Syndrome? According to Dr Joy it is  a condition that exists as a consequence of multigenerational oppression of Africans and their descendants resulting from centuries of chattel slavery. You think I’m reaching?

The judge, clerk and my lawyer were all white men.

I was denied because I homeschool my own children, not anyone else’s and I am not raising them alone.

The day of the court hearing, I went home and got into bed and slept for what seemed like a couple of years. I became angry, depressed, and developed so much anxiety!

My husband was so patient, as well as my children. I thought about how they were losing me but I was so lost that I could not find my way back to what was almost normal.

The support that I have gave me strength. I began therapy. I found a self publishing coach and became certified in Usui Reiki. And self-published my second book called The Black Woman’s Journal to Minding Her Own Chronic Pain .

Since then I have self-published more books and my last book Keep Your Evil Eye Off My Hustle: Blueprint to Greatness with Journal Prompts has made it to the First Listing in the BOOKS category on Amazon!

I still get up and say thank you to the Creator daily because my plan was not the plan for my life! Giving up definitely was not the plan!

My oldest child tells me “I wish I had the mom you are now when I was younger “…

LaTrecia Doyle-Thaxton is a self-published writer, blogger, mother and wife. A Certified USUI Reiki Master Teacher, Author, Crafter, Homeschool mom who brings awareness to Fibromyalgia and Chronic Pain Sufferers. Stay Grounded.

Leave a comment